Lyme Federal Framework Tabled..Canada in Crisis now!
LymeHope Moms React to Framework released today. (05/30/2017) Oakville, ON - LymeHope Moms say the Federal Framework on Lyme Disease needs to be put into action immediately to address the crisis of Lyme disease in Canada.
Two Canadian moms, Jennifer Kravis and Sue Faber, are the founders of LymeHope, an organization dedicated to giving a voice to those affected by Lyme disease in Canada. Both have been diagnosed with Lyme disease, and have been advocating on behalf of the Lyme Community since the Draft Framework was released on February 7, 2017. They have brought the voices of 40,000 Canadians who signed their Ticking Lyme Bomb Petition [https://www.change.org/p/minister-philpott-ticking-lyme-bomb-in-canada-fix-canada-s-lyme-action-plan-now], as well as the more than 10,000 petition comments and personal letters written by men, women and children to Parliament Hill in Ottawa. Kravis and Faber have also been called as witnesses to an inquiry on the Federal Framework by the House of Commons Standing Committee on Health in Ottawa next Tuesday June 6th.
“The final Framework released today is still completely inadequate. It does nothing to improve the impact on patients – those already affected and those who are being infected every day across Canada. It is also silent as to the risk of congenital transmission from pregnant mother to baby” says Faber, a registered nurse from Burlington, Ontario, who had to give up her career and continues to feel the effects of Lyme disease.
Jennifer Kravis is a lawyer and former bank executive from Toronto who also had her career cut short by Lyme. “Public Health has acknowledged their numbers are under-represented but don’t know the extent of the discrepancy. We commissioned a national poll to get the incidence of Lyme disease in Canada and the true number of people afflicted by this disease is in the millions – it’s staggering.”
Lyme disease is a tick-borne illness, which is becoming much more prevalent in Canada due to climate change. Just a decade ago, Lyme infected ticks were present only in few isolated pockets of the country. Today, Lyme bacteria are found in virtually every province. It takes just one bite from one tick to transfer the infection to humans.
Lyme disease is one of the fastest spreading infectious diseases in the world. It is carried by ticks, which are migrating all across Canada at an alarming speed. Canadian scientists predict that by the year 2020, 80% of the population in Eastern Canada (including Manitoba) will be living in a tick-populated area. Right now, the Government of Canada is considering a draft Action Plan to address Lyme disease that does not do enough to address the issues.
Join thousands of Canadians right now and send a letter telling your MP how important it is that an Action Plan addresses ALL the concerns related to Lyme disease that have been raised! Use the form below:
Lyme Letters Canada and Canada Wide Petition 2017: If you are participating in Lyme Letters Canada Campaign, please click on Lyme Letters Canada Tab or link http://lymehope.weebly.com/lyme-letters-canada.html for more information, disclosure and updates. We need your help with this!! We also need your help with two Canada wide petitions - Change.org petition (which has over 36,400 signatures as of March 9, 2017) and Government Petition sponsored by MP Elizabeth May (has over 3900 signatures as of March 9, 2017). Please continue to share these petitions far and wide - link to both below: http://lymehope.weebly.com/2-petitions.html We are at a critical juncture in Canadian history as the draft for the Federal Framework on Lyme Disease was posted on February 7, 2017 and the 30 day response period is now over. We need to unite together, keep momentum going and continue to have our voices heard and our concerns addressed. Important: Updates on Lyme Letters Canada can be obtained by:
Lyme Letters Updates tab above
complete Contact Form above and request to be added to Lyme Letters Canada list
Through the CanLyme email distribution list found on CanLyme Homepage above.
Important - I (Sue Faber), Founder of Lyme Hope, Lyme Letters Campaign and one of the Lyme petition authors have no conflicts of interest. I receive no funding and have no ties to any pharmaceutical, insurance or medical industries although I am a nurse by profession. I am simply a mom who has chronic Lyme Disease, trying to effect change to help my family and other Canadians. More information on me can be found here: http://lymehope.weebly.com/why-i-am-coordinating-lyme-letters-canada.html
LymeHope (Please note, this group is separate from the Lyme Letters Campaign): We are a Canadian support and advocacy group for Canadian Lyme sufferers with a focus on families of children and youth with Lyme Disease. Our purpose is to unite, engage and empower Lyme sufferers adults and children alike with Lyme Disease and Tick-borne infections from across Canada. When we come together, our voices are amplified and our message is clear and strong. No one should have to fight for equitable treatment, care and compassion from their physicians. It is our strong belief that every Canadian affected by Lyme and associated Co-infections should be provided with timely access to expert consultations with Lyme-literate physicians and have access to appropriate and reliable testing, patient-centered treatment and individualized, holistic care-plans. Families should not have to seek help outside of Canada for medical care.
It is our collective goal to compile our individual stories, case-studies and clinical evidence and to share this valuable information in a proactive way - with our medical boards, Public Health, and scientific/research community as well as the general public and local, provincial and federal government. This focused information will be a powerful means to develop insight and awareness regarding pediatric Lyme presentations from acute to chronic infection and congenital/gestational Lyme.
Are you interested in being a part of our LymeHOPE movement? Please fill out the contact form above.