Jennifer Kravis (a lawyer) and myself - Sue Faber (a nurse) – Moms who have been diagnosed with Lyme disease, are travelling to Ottawa Wednesday April 12 and Thursday April 13, 2017 to represent the tens of thousands of Canadians Concerned about Lyme disease.
We will be on Parliament Hill to ask the Health Minister Jane Philpott whether the Government is putting into action the outcry of more than 38,400 Canadians who signed the Ticking Lyme Bomb petition which we authored. http://bit.ly/2lfBuNL.
We have also asked for a meeting with Minister Philpott so that we can share meaningful dialogue with her about the clear concern which Canadians have about Lyme. We wish to present her with more than ten thousand petition comments and 2,200 personal letters written by Canadian men, women and children literally pleading to be heard about their profound suffering and neglect as a result of the denial and lack of treatment for Lyme disease in Canada.
We have also secured meetings with 4 MPs while in Ottawa and are waiting to hear back from many more. Our journey to Ottawa is being documented on our LymeHope facebook page here: https://www.facebook.com/lymehopecanada/
Lyme disease is one of the fastest spreading infectious diseases in the world. It is carried by ticks, which are migrating all across Canada at an alarming speed. Canadian scientists predict that by the year 2020, 80% of the population in Eastern Canada (including Manitoba) will be living in a tick-populated area. Right now, the Government of Canada is considering a draft Action Plan to address Lyme disease that does not do enough to address the issues.
Join thousands of Canadians right now and send a letter telling your MP how important it is that an Action Plan addresses ALL the concerns related to Lyme disease that have been raised! Use the form below:
Lyme Letters Canada and Canada Wide Petition 2017: If you are participating in Lyme Letters Canada Campaign, please click on Lyme Letters Canada Tab or link http://lymehope.weebly.com/lyme-letters-canada.html for more information, disclosure and updates. We need your help with this!! We also need your help with two Canada wide petitions - Change.org petition (which has over 36,400 signatures as of March 9, 2017) and Government Petition sponsored by MP Elizabeth May (has over 3900 signatures as of March 9, 2017). Please continue to share these petitions far and wide - link to both below: http://lymehope.weebly.com/2-petitions.html We are at a critical juncture in Canadian history as the draft for the Federal Framework on Lyme Disease was posted on February 7, 2017 and the 30 day response period is now over. We need to unite together, keep momentum going and continue to have our voices heard and our concerns addressed. Important: Updates on Lyme Letters Canada can be obtained by:
Lyme Letters Updates tab above
complete Contact Form above and request to be added to Lyme Letters Canada list
Through the CanLyme email distribution list found on CanLyme Homepage above.
Important - I (Sue Faber), Founder of Lyme Hope, Lyme Letters Campaign and one of the Lyme petition authors have no conflicts of interest. I receive no funding and have no ties to any pharmaceutical, insurance or medical industries although I am a nurse by profession. I am simply a mom who has chronic Lyme Disease, trying to effect change to help my family and other Canadians. More information on me can be found here: http://lymehope.weebly.com/why-i-am-coordinating-lyme-letters-canada.html
LymeHope (Please note, this group is separate from the Lyme Letters Campaign): We are a Canadian support and advocacy group for Canadian Lyme sufferers with a focus on families of children and youth with Lyme Disease. Our purpose is to unite, engage and empower Lyme sufferers adults and children alike with Lyme Disease and Tick-borne infections from across Canada. When we come together, our voices are amplified and our message is clear and strong. No one should have to fight for equitable treatment, care and compassion from their physicians. It is our strong belief that every Canadian affected by Lyme and associated Co-infections should be provided with timely access to expert consultations with Lyme-literate physicians and have access to appropriate and reliable testing, patient-centered treatment and individualized, holistic care-plans. Families should not have to seek help outside of Canada for medical care.
It is our collective goal to compile our individual stories, case-studies and clinical evidence and to share this valuable information in a proactive way - with our medical boards, Public Health, and scientific/research community as well as the general public and local, provincial and federal government. This focused information will be a powerful means to develop insight and awareness regarding pediatric Lyme presentations from acute to chronic infection and congenital/gestational Lyme.
Are you interested in being a part of our LymeHOPE movement? Please fill out the contact form above.